Neurofibromatosis is the most common neurological condition caused by a single gene, and it affects one out of every 2,000 births. Currently there is no cure, no long-term treatments or any prevention for NF.

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NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.