Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people challenged with Neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
For the most up to date NF information, read our latest Newsletter
UPCOMING EVENTS SEE ALL»
Houston Support Group
The NF Support Group is designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend. Dinner and child care will be provided. The NF Support Group will be held quarterly...
Dining Out In Dallas
Now celebrating its 20th anniversary, Dining Out in Dallas has grown to become the signature fundraising event for the Texas Neurofibromatosis Foundation. The event has raised more than...
Thanks to our sponsors and volunteers, many NF families had a blast at the 2nd annual holiday fundraiser & family event, "Cookies with Santa," which was held on Sunday, December 7, 2014, at The University of Texas MD Anderson Cancer Center in Houston. Pictured (L to R): Chris Cason, Board President; Cindy Hahn, Executive Director; Eoff Family, host family; and Kara Irvine, Event Chair
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