Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people challenged with Neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
For the most up to date NF information, read our latest Newsletter
UPCOMING EVENTS SEE ALL»
Texas NF Family Camp
September 5-7, 2014
Camp is a great time for patients to learn, laugh and make meaningful relationships with new NF friends while growing closer to their own families. Activities include; arts and crafts, canoeing & paddle-boating...
Fort Worth Support Group
October 9, 2014
The NF Support Group is designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend. Dinner and childcare will be provided. The NF Support Group will be held quarterly...
The John D. Wagner and Elisabeth R. Wagner Scholarship is a scholarship awarded each school year for people afflicted with neurofibromatosis who are seeking higher education. Pictured: Elisha Adair, Emily Parker, Maggie LaRonge, and Alyssa Vasquez. Best wishes for the 2014-2015 school year!