Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people challenged with Neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
For the most up-to-date NF information, read our latest Newsletter.
UPCOMING EVENTS SEE ALL»
Forth Worth NF Support Group
Join us for a Family Art Activity in the Atrium! RSVP to Julie Schmidt at...
Houston Support Group
The next Houston Support Group is Thursday, February 11th. RSVP to Marti Dunn at d ...
Kennedy was diagnosed with NF Type 1 at age 6. She is a compassionate little girl, and wants to do all she can to help others. She has been active in cheerleading and last year she put her skills into action and began raising money for NF. Kennedy started a Cartwheel-A-Thon benefiting Texas NF, and plans to continue it every year to raise awareness and funding towards a cure. Read more of Kennedy's story here.