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Texas Neurofibromatosis Foundation - 2


Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

The Texas Neurofibromatosis Foundation®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.

Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.  

There are many ways you can help!

For the most up-to-date NF information, read our latest Newsletter.


NF Awareness Month

May is National NF Awareness Month!! Join us and other people across the country in showing your support for ...


Evenings with Genetics Seminar

The next Evening with Genetics seminar is Tuesday, June 7th. The topic is Neurofibromatosis Type 1: Updates in Lifelong Care and Screening ...


NF Awareness Month 2016

May is National NF Awareness Month. It’s a great opportunity for the NF Community to increase awareness and educate those around you on Neurofibromatosis. See the latest on how we are raising awareness here. Follow us on Facebook for ways to get involved!