Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
For the most up-to-date NF information, read our latest Newsletter.
UPCOMING EVENTS SEE ALL»
Houston NF Support Group
Join us at the next Houston NF Support Group. The support group is designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend. Please RSVP to Marti at...
Fort Worth NF Support Group
Join us for the next Fort Worth NF Support Group. The topic will be “Starting the School Year Out Right”. Please RSVP to Julie at...
Your voice was heard loud and clear in support of Senator Dick Durbin's (D- Illinois) amendment (#4369) to the FY17 National Defense Authorization Act (NDAA) that passed with a vote of 66-32. This amendment has cleared the way for critical research (including NF) that is done through the Department of Defense to continue, and not be strangled in red tape. #ResearchNotRedTape