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Texas Neurofibromatosis Foundation - 3


Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

The Texas Neurofibromatosis Foundation®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.

Our mission is to meet the needs of people challenged with Neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.  

There are many ways you can help!

For the most up to date NF information, read our latest Newsletter


Texas NF Golf Classic
November 3, 2014

Please join us for the annual Texas NF Golf Classic (formerly Friends Fore Friends tournament) benefiting the Texas Neurofibromatosis Foundation®. 100% of the net proceeds...


Cookies with Santa
December 7, 2014

Cookies with Santa is designed to appeal to children of all ages but especially for our youngest friends. NF patients, families and friends can celebrate the holidays with festive crafts, holiday music, caroling ....


Meet the 2014 John D. Wagner & Elisabeth R. Wagner Scholarship Recipients

The John D. Wagner and Elisabeth R. Wagner Scholarship is a scholarship awarded each school year for people afflicted with neurofibromatosis who are seeking higher education. Pictured: Elisha Adair, Emily Parker, Maggie LaRonge, and Alyssa Vasquez. Best wishes for the 2014-2015 school year!
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