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Texas Neurofibromatosis Foundation - 4

Welcome

NEUROFIBROMATOSIS is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide.  NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined.Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life.  It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin.  NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

THE TEXAS NEUROFIBROMATOSIS FOUNDATION®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.

OUR MISSION is to meet the needs of people challenged with Neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.  

There are many ways you can help!
PARTICIPATE.  ADVOCATE.  DONATE.

For the most up to date NF information, read our latest Newsletter


UPCOMING EVENTS SEE ALL»

May
1-31
National NF Awareness Month
May 2014

Join people across the country and around the world in showing support for the more than 2 million worldwide living with NF. Your efforts to help educate others about the disorder will help find a treatment and a cure for NF.

June
12
Fort Worth Support Group
June 12, 2014

The NF Support Group is designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend. Dinner and childcare will be provided...

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MEET CONNOR

"Connor is an intelligent, curious amazing 10 year old boy. He is currently in the 5th grade and while he is home-bound, he is an exceptional student. Connor loves learning, and especially enjoys computers and technology. When he’s not listening to Percy Jackson or Harry Potter books on CD, he’s playing Minecraft, writing for his blog or beefing up his server specifications. Connor is a blessed child. He has a very supportive family, church family and huge network of friends and supporters..." Read More »