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Texas Neurofibromatosis Foundation - 1


Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

The Texas Neurofibromatosis Foundation®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.

Our mission is to meet the needs of people challenged with Neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.  

There are many ways you can help!

For the most up to date NF information, read our latest Newsletter


World NF Awareness Day

Did you know that May is NF Awareness Month? Join us May 17 in raising awareness! You can help by learning, donating, volunteering, advocacy, and more... 


Texas NF Symposium

The Texas NF Foundation organizes an annual educational symposium for patients and their families, to be held this year in Austin, TX. The one-day symposium features...  


Host Chef Samir & Jr. Chef Ethan

Each year, at our signature event Dining Out In Dallas, Battle of the Chefs, our host chef and junior chef play an integral role in supporting NF advocacy and making Dining Out In Dallas a success. Pictured at left is our 2015 host chef Samir Dhurandar of Nick and Sam's Steakhouse and our 2015 junior chef Ethan, age 11. Check out Ethan's story to learn more about his journey with NF.    
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