Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people challenged with Neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
For the most up to date NF information, read our latest Newsletter
UPCOMING EVENTS SEE ALL»
Houston NF Support Group
August 7, 2014
Topic: “NF and Education Issues” with Kris Frost, M Ed. Don’t miss this opportunity to discuss NF and Education Issues as school is just around the corner. Dinner will be provided...
Annual NF Symposium
August 16, 2014
This one-day symposium features a variety of speakers, such as doctors, researchers, counselors, and patients. Information is provided on various topics of interest to people and families dealing...
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